Provide family centered support for children with complex or chronic medical concerns as they navigate the health care system.
Resources for Families:
- Provide support as family adjusts to/manages child's diagnosis, prognosis or changing health status
- Help families develop skills and strategies to manage/organize their child's care
- Connect to appropriate resources, supports and funding
- Coordinate team members, care provision and appointments
- Education regarding health care system, health conditions and care
- Anticipatory guidance regarding health condition or treatments
Resources for Health Care Providers: (with or without client referrals)
- Provide information about pediatric supports and processes in the South West Zone
- Consult and problem solve unique pediatric situations
- Provide support and connection to pediatric resources for care providers
Potential referrals could include (but are not limited to)
- Discharge with ongoing medical needs after lengthy admission
- Family moving in or out of the zone / province / country
- Palliative or life limiting conditions
- Significant medical needs, a large multidisciplinary team between multiple centers
- Family is experiencing barriers that impact their ability to manage their child's health care
- Prenatal referral for fetus with complex or palliative diagnosis