The Pediatric Neuromuscular Disease Clinic offers care and support to children with diagnosed muscle and nerve problems, and their families.
The Pediatric Neuromuscular Disease Clinic helps kids who have muscle and nerve problems, known as neuromuscular diseases. They also help their families. Here's how they do it:
- Family Support: They offer help and encouragement to families who have a child with a neuromuscular disease. This can include advice, emotional support, and connecting families with other resources.
- Therapy and Bracing: The clinic provides therapy to help kids improve their muscle strength and coordination. They may also recommend special braces or supports to help kids move better and feel more comfortable.
- Ordering Equipment: Sometimes, kids with neuromuscular diseases need special equipment to help them with daily activities. The clinic can help families get the right equipment they need.
- Teaching and Information: The clinic educates not only the child but also their family and school about the disease. They explain what it is, how it affects the child, and what everyone can do to help the child succeed in school and life despite the challenges of the disease.